I am so sad that the story of your child was so hard to tell. It is an important story. It is a story of courage. CAH is a RARE Malfunction. It is so uncommon, it is considered an "Orphan Disease" by the U.S. Government. My daughter was also born with ambiguous genetalia. She was diagnosed quickly because I was fortunate to have a Pediatrician who was also an endocrinologist. Nobody knows everything, we can only try our best - and if you are not happy with the answers you get, you keep asking the questions, until you get answers that make sense - just like you did. Just like you will continue to do, until your child is an adult. The hardest task a parent has, is to keep our children safe, yet let them be children. We want to wrap them in cotton and fix everything! There are just some things we cannot control. I learned that the hard way, when my daughter decide to walk at 10 months (she is 11 now). I want to encourage you, life may not get easier, but you will keep on - one day at a time. Enjoy your child, she is very special. She has a great life to live and great parents to teach her.