Hi.I have two boys with cah ages 8 and 4.They to have growth problems.Your story sounds a lot like ours.When my oldest son was born nobody even knew anything was wrong with him.He even left the hospital.Anyway to make a long story short he went into adrenal crisis.Nobody could find out what was the matter with him for about a week after that.Some doctors say it might have stunned his pubitary gland.Some say it didn't.All I know i he is 8 years old and people think he is 5.We started growth hormone in October,and we are seeing good results.I wish you good luck,I know how hard it is.Growth failure seems so minor when you look at what could happen,but it really bothers my son,so it isn't minor to us.If anyone ever gives you an explaination please let me know.There has to be a doctor out there somewhere who has the right answers.Tracy