Thannks for answering my message. It is nice to take to someone who knows what you are going through. Your friends and family understand but just don't quit really understand. I think the seacert to the growth problem is starting off at birth with the right doctor and the proper medicne dosage. My 7 year old (Scott) started off the hard way like yours and we were very unexpected as to what was going to happen and how important the right doseage of medicine is. At the last bone age scan Scott had his bones were at his age. So, maybe his genitic height is not going to be very tall. But some boys don't grow much until their older. Sometimes you wish you can perdict the future. I still would like to know of any diet that might work better with CAH kids. Scott is over weight by about 15 or 20 lbs. Its is hard to tell weather that is CAH or gentic. I've have always had a weight problem. Thank for your information. Dawn