Hi everyone, I feel like I should clear some things up about the study. My son was accepted into the study in July. We took our first trip there at the end of August. NIH does not pay for your first trip. We contacted an agency that pays for medical related flights for the child and one parent. We only had to pay for one other plane ticket. Every visit after the first visit, NIH will pay for the child and one parent's airfare. The study is until they are 16, I think:o) Anyway, the first visit was back-to-back appointments. He had x-rays, testicular u/s, bloodwork, pictures, meetings with different people. Remember, these professionals are there to deal with children. They have wonderful bedside manners. They even have a 'treasure box' for the children to choose from after they get the hep-lock out in. You will be very impressed with Dr. merck and Meg. They are so knowledgeable. They are very open with everything. Dr. Merck spent 2 hours with umy husband and I at the end of uor initial visit. On our second visit, 3 months later, they told us our son would be on the experimental side of the protocol. I was told everything about the drugs. They even sent me home with FedEx mailing labels for when my ped draws the 17-OHP's so we can mail them at no cost. We met with a psychiatrist our last visit there to discuss his behaviour. The best part of this is the teamwork involved. Every specialist is under one roof, so they can confer as needed. I would like to add that I was hesitant about this study because they give liquid Cortef instead of the tablet. We weighed the pros and cons and decided to go along with the study anyway. Meg called me yesterday and informed me that she was Fed Ex'ing me some Cortef tablets. They are switching from the liquid to the tabs. I am very happy with my son's treatment. For us, it is the best thing. I am not nearly as anxious as I was pre-NIH. Thanks, selena batmanv@mindspring.com private e-mails are welcome