Mara: Your two cents is worth more than that. My daughter is only two now and to hear from someone who lives this everyday helps me to get a good perspective on things. It's pretty hard to ask a two year old these things. If you don't mind me asking, how old are you? I was introduced to a girl that was nine when my daughter was born that shared her disease. It's just a mom "thing" to find this common thread, so we can get a better understanding of what our children endure. Thanks for your two cents worth.