Wow, sounds like you have been through a ton in matters! I like the way you state your number one priority is "that your son doesn't die from CAH" - there are several of us on the board that wish we had been made aware of THAT matter, that our endos had even told us our children about how our children can die from CAH (we learned the hard way). Think maybe 'precocious puberty' & bone growth matters get glumped together sometimes, but they are two different things.