My son has been involved in the CAH study at NIH for many years. He is approaching his 16th birthday. This is my first entry onto this message board, so I do not know previous discussions, but I would like to say that while he had excellent care with a pediatric endocrinologist, we felt involving our child in the study would be an overall beneficial move. We needed to invest effort in convincing his MD that we were satisfied with his care, but that we believe in research. With our other child, now a cancer survivor at 17yrs. , we saw how quickly research from NIH could dramatically change the direction of treatment, and how children were not just helped, but lives saved. Our son has the salt-losing form, diagnosed at 5 wks. He is a handsome, intelligent, well-adjusted young man who swims competitively on the high school team and golfs. I hope all parents of young children with CAH, can have the positive experiences we have had with the medical community both locally and in working with NIH. While not tall, he is about 5'7" or 5'8' now and looks down at his mother. Dr.Martins add at least an additional inch or so.