I am a mother of Alexander a boy who is almost 5 years old. In november 1999 the doctors found out that he was having the disease cah. They have now started the treatment, but they have not been able to give him the right amount of medicine yet. I do not have any contact with others in Denmark with the same disease and it is a big problem, because the doctor we are seeing will not help us to get in contact with other families. I think my boy is having a violent behavior and I do not know how to make him act otherwise. I have been told that he will not grow up to be tall,but nobody knows how tall he is going to be. I would surely like to get in touch with other families, who has a child who has the disease. and it would be nice if the disease have been discovered as late as Alexanders, then we might have a chance to find out how the next years will be for our boy. I hope to hear from others and send the best wishes for you all.