We live north of Kansas City, Missouri. Thought this was interesting: the endo stated the children's hospital in Kansas City has 30-50 CAH patients, when I posted looking for KCMO vicinity people - had no replies from anyone who currently resided here or ever went to that hospital. Earlier this week, I called St. Louis Missouri (2 children's hospitals) - those two hospitals stated a total of 150 CAH patients. There are a lot of people with CAH out there!!