CILMB is the charity organisation for all metabolic dieases with includes CAH. They have a fantastic support network it is an organisation similar to Majic Foundation. Let me know if you want details. By the way I have heard it is difficult to manage CAH with liquid hydrocortisone - check with your endo again. I remember when our daughter was diagnosed and given her medication the doctor was very specific and said NOT liquid. so please check it out. Theresa