My mother handled it mostly by avoidance. She never sent solu-cortef (I can hear you sigh all the way from Virginia, Roberta) and never really told me anything until I asked. She never even lets me put it down on school medical forms. I understand her reasoning. When she was growing up, her aunt (or great aunt, I don't remember exactly) had some sort of adrenal problem. We don't know if it was CAH, but it could have been. Anyway, she was very tall, was built like a man, and had facial hair. People called her a half-breed (half man, half woman). My mom didn't want anyone to hear the name of my disease, get curious, and then go off half-cocked when they found out about the ambiguous genitalia. She never wanted me to go through life with people thinking I was some sort of freak. I didn't really know much about CAH until about two years ago; I don't know if I even knew the name. I started asking a few questions on the way to my endo appointment. She really didn't know that much. I had even more questions last summer when I went to my endo. At that point, I did a little research of my own and found this message board. I now know a lot more than my mother does about it, and that's fine with me...it's my life, my disease, my responsibility to manage it. Sorry to go on so long, but I just wanted to show that there are reasons to keep quiet.