Re: Social Issues
2/12/00 3:21 PM
I am becoming more conservative in sharing info about my 19 mo old son. When he was first born and diagnosed I was very open about his condition. Now I am beginning to see some drawbacks to an open style. For example, a mom in his playgroup questioned the medic alert bracelet so I explained a little bit about his condition. Something to the effect of "he has an enzyme deficiency and he takes replacement medication". Answering further questions with . . . "it can be quite serious for him if he gets too high a fever, a broken bone, or vomits too much." Now one of the over protective moms hovers over him and frequently asks me questions about whether "he is all right." During a recent discussion about sports she asked me "what is wrong with him again?" and "will he be able to play any sports?". I try to not let her phrasing bother me, but I do find it quite annoying. I hope as he gets older I will find a better balance of telling those in his care what they need to know, without giving them so much information that they treat him differently. I also never want him to hear and understand questions such as "what is wrong with him".
Chris D
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