Our daughter was diagnosed at birth with salt-wasting CAH. She had some verilization and at age two had a "reduction" surgery. She takes 20mg Cortef and .1 mg Florinef daily. She is due for another Bone Age soon. Although we have experienced a number of crisis over the past several years we have "dealt" with her condition just fine. I thank God everyday for her and for what she has brought to our lives. With the help of family, friends and the awesome, caring staff at Childrens Hospital we are making it through all this. We are on a first name basis with the Endo doctor but as you all are finding out no one can understand like someone who has it or one who has a child who has it. Thanks for the messages you have posted in support of one another. It warmed my heart to find this site today.