Our son Jonathan was rushed to the Pediatric ICU the day after he was born with a strep-b infection. The doctors were giving him a 50/50 chance. He hung on, all hooked up to a ventilator and IV's. He seemed very helpless laying there. After about a month he was still there in the PICU and the doctors could get him to improve. The were worried about his potassium levels and wanted to do some tests. Then they told us he had CAH. To be honest after all he had already gone through we were sort of relieved that they maybe had found a cause and could finally treat him. We were able o bring him home a month later. He's had a few adrenal crises that resulted in hospital visits, but by the time he was two his health leveled out and he maybe has a problem a couple of times a year, and those always seem to be "by the book" and are quickly treated. He just turned six. He's smart, outgoing has this little infectious giggle when he finally understands something. Every single "disadvantage" that the CAH may have brought into his life is paired with a much greater good that results from the same source. Once you get the hang of the medicines, the symptoms of oncoming adrenal crises and the other bits and peices of life with CAH you'll find that it's not anywhere near as scary as it seems to be now. You've found the best place for advice and support here at this message board. We have four kids, two with CAH, and plan to have more. Find yourself a good Pediatric Endocrinologist (if you mention the area that you live, someone may be able to recomend someone to you) and you'll be fine. The bottom line is, if he has CAH, it's not the end of the world.