Theresa, when my daughter was diagnosed, at 3 AM (30 seconds after birth), I suddenly had a pediatric endocrinologist, a pediatric surgeon, a radiologist, and a pediatrician all talking to me about various aspects of this new and strange CAH thing. I kept waiting for one of them to step forward and "take the lead" as her main doctor. None of them did, and I couldn't figure out why. They were saying some things that were contradicting each other, too. Then it dawned on me. I was the one who had to take the lead. I was the one who had to step up and be the grownup. What an awful shock that was! But it's true. You are going to be your child's advocate. You're going to have to get in your doctors' faces and make them answer your questions. Start here--"Doctor, not knowing scares me more than anything you could tell me. So take five minutes and tell me what is going on. Explain what CAH is. Explain what will happen if we wait 2 more weeks for testing. Explain what each of these specialists is doing." Take notes. Force yourself into a business mode (non-emotional). And most of all, kiss your little baby on the nose. I can't explain why--but it will take away your fears and make you feel like everything is going to be okay. Which it is. CAH is a lot like diabetes, in the sense that there's an endocrine problem, and your child will have to take medicine every day (no needles) and monitor it through periodic blood tests. But it doesn't have the serious side effects. Your biggest worries will be vomiting and growth rate. For a rare and scary condition, it's not so bad. =) Listen, if you want to talk more, feel free to e-mail me at eirual_s@hotmail.com laurie