Hi, I have 6 children, 2 with CAH, a daughter Karen (age 7) and a son, Ben, who died when he was 6 months old, when his potassium level suddenly rose and stopped his heart. Karen is a little ball of light through much of the day, but by the end of school she just curls up in a chair and needs to rest for about an hour or more. Sometimes she even falls asleep on the school bus. Do you see this in your children? The frustrating thing about CAH is--you never know if what you're seeing is normal kid stuff or a symptom. I just found the board today. I've had a great time reading all your comments. We don't know any other families with CAH, so it's nice to talk with others who understand. laurie