I just found this site this early morning and I'm glad that there are some of us who are a little older. I just wish when I was growing up 40yrs ago that they had all this help for my parents, which they still don't talk about. I was very lonely growing up with this, and I'm so very happy that these parents are trying to find all the help they can on CAH. Because mine didn't even bother I had to learn the hard way, and i'm still learning. I've had my ups and more downs then I can count.I hope I can be of service with all of you please e-mail if you want to it would be great. Thank You