In response to much more than AG
3/6/00 11:45 AM
Well, thanks to some for sticking up for me. My message was not intend to indicate that all children will have problems in later life as I can only speak for myself. I had very few problems as a child other than extreme obesity and early menes/puberty. Atleast i didn't view some of them as problems. In hindsight i have had extreme migraines since I was 10 that had no explainable cause (up 4 to 5 a week) It was not until I turn 17 or 18 that the true problems came and the psychological issues began. Everyone is different and I may be an extreme case. I have never had my condition under control in the 19 years that i have been treated for it and the problems that come with untreated CAH have afflicted me even though i was treated. My last 17-OHP test read 1404 and I am was on 20mg of hydrocortisone, 175mg aldactone, and birth control pills. Yet my levels were still high enough to almost send me into adrenal crisis. As you can see sometime things aren't always rosy. Everyday when I popped my 5 to 10 pills I have to think that I have a condition that does not go away and may potentially affect my ablity to have chilren. YES, I want to have children. But unfortunatly, due to this "condition" I will likely not be able to! That makes me really sad. In the last year things have really popped up as far as the psychological area is concerned and i have been continuously on antidepressants and almost checked myself into a hospital twice. Talking with other adults who have adrenal problems the depression and anxiety that I suffer is not uncommon among CAH adults. I just think how hard it would be on my family if I didn't make it another day (used this term in lui of a stronger one sicne this is a family board). I am not critisizing parents who choose to have children even when one child in the family has been affect. I also have a sibling(younger) and although I am not sure what precautions were taken by my parents because I was too young and my mother generally does not speak of her health with me. Luckily my sister was born without CAH. Although I was born with CAH and doctors beleive that I have the classical, non-saltwasting form. I had no ambigous genetalia other than a slightly enlarged clitoris which still exists today and I can say that it does not both me in the least(in fact it is a blessing as far as my sexuality is concerned). I just think that everyones story should be told. I joined this list because I have yet to come to terms with this "condition" and it severly affects my life. I hope that other children with this condition out there do not have to suffer as much as I did and do still. I am looking for support but I like to be honest because that is what dealing with this condition is all about. Thanks
Ashley
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