Jenni, I have to admit when I read Ashley's post, I felt some anger,too. I have two children with CAH non salt wasting and I want to believe every day that this is all under control and we can sometimes even forget about it. That's not realistic, though. I have gone to the late onset board a few times to read some of the posts. Some can be very scary but they do raise questions that I can bring to my children's endo and maybe they will avoid those problems. I am grateful for any input. My son is 14 and up until now was completely suppressed. His doctor felt he would grow to a "normal" adult height. Once he entered puberty, a whole new game began. His levels have not been completely controlled and now they feel he may never be taller than 5'4". I know there are worse things but not to him! We still have hope and will be seeing a growth specialist. I need to find out about these bumps in the road from someone who has been there. I don't know how I would deal with the constant medications, etc. I don't know how my kids do but I am sure they will be angry someday--it's only "normal". If we can help someone get past it--let's! Ashley, I hope you will continue to share you thoughts, concerns and fears with us. I hope we can help! You've helped me. I always thought that once my kids were suppressed, the hard part was over. No one ever told me that it could change! Thanks!