I would urge you to contact the Magic Foundation, 800-3MAGIC3, or www.magicfoundation.org, for the upcoming convention program, which may be beneficial, as well as any other material they can send you. They have 10 divisions, one of which is the CAH division, run by Director Cathy Kusch, who has a ten or eleven year-old. There are also late onset parents and children as well. Also ask for their current newsletter. It may help! Good luck