Re: JULIE-Caudal Block
3/12/00 5:32 PM
Hi Julie, I have a 2 and a half year old daughter that is a salt waster too. It is very overwhelming in the beggining. I sure wish I had this board from the beggining. I always like to pass on my recommendation regarding pain management during the corrective surgery. My daughter had it done at 6 months old. It was a very long operation. It was harder on my husband and I then her. Her anesthsiologist recommended using a caudal block. It is a tad bit different then an epideral like used for labor. She had this for two days and it worked perfectly. It gave her lots of time to eat normally and sleep normally. It took stress off her little body. She was not drugged so badly. Please ask her anethsiologist ahead of time about this. Find out the pros and cons. I tell you it made a huge difference. She healed perfectly. She stayed, I believe 3 days in the hospital. I stayed with her. We decided to do surgery at that age because I felt she would not remember it later. Also the doctor felt it would psychologically help her later. She would not feel as though she was "missing" a vagina and we had to give her one. There was no questions a 6 month old could ask either. Later we will discuss the surgery when we feel it is appropriate. Again I must say this was our own decision. You will find every child is different, every parent is different, and every endocrologist is different in their treatments. That is the hard thing about CAH, it is a true grey area. The only black and white there is to it, is the fact that these are our kids. We have been blessed to take care of these kids. It will be our attitudes that we have about their CAH that will be passed on to them. It is not an easy road. You will have good days, and bad. Be thankful for every good day. Having a child with CAH just makes you realize even more how precious a child is. Knowledge gives me strenghth. This message board has done just that. It takes away the unknown. God bless.
Laura
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