I am writing because my partner has CAH. I have read everything I can find about the disease but I would like to know more. My partner is a women who was diagnosed as an infant. She was born with an enlarged clitorus and the doctors simply removed the entire thing! The doctors also told her parents she was a boy when she was born for this same reason. I guess CAH can be a trial for any child, but in a disfunctional family it becomes a nightmare! She was never told anything about CAH or the surgery or any of the many internal examinations she had to go through as a small child. She had no idea what was going on. When she was 18 her family doctor told her inadvertantly, by joking about the fact that she was given a boy's name for the first year of her life! My partner is 46 years old, so I hope surgery and treatments have improved since then. Anyway I am trying to find any information about others who have had to deal with similar ordeals and how they handled it. I love my partner very much and want to support her anyway I can. Her medical care is in good hands, but I want to help her emotionally. I will appreciate any help. Thank you.