I also had a child die because the docs weren't catching an obvious symptom. My daughter is on 6 mg 3xday. She's seven years old and 46 inches. It's a rather high dose, but it's what she needs to stay balanced between total suppression and normal growth. Michele, why is your doctor refusing to draw blood any sooner? Does your endo give a reason? After all, it doesn't hurt the endo at all. Again, I would have to say, it's time to get on your charger and fight for your child. You do have a charger, don't you? A suit of mail comes in handy too, sometimes. We're with you, hon! laurie