You need to call a ped endo that will take you seriously and will help you over the phone. THe only people I know that will do this are at Cornell and work with Maria New. THey will do everything they can to help you. You can even have the blood drawn where you live and sent to them. Call them. They will call you back. Dr. New, Dr. Voghiatzi, Dr. Gaseco, Dr. Harbison. Good Luck.