Thought I posted this before, but it didn't go through? We are suddenly in the process of putting together a registry of CAH patients! The next steps in the process-- 1] tell me what data fields you think should be included (ID number, blood test results, ht/wt, ethnic background, age, age at diagnosis...--your turn!) 2]are you willing to share your /your child's data to test the site? 3] we need a lawyer (pro bono) to deal with issues of privacy/liability. Anybody got a lead? How this came about--I was praying about the need for a single registry of all CAH patients, and this guy's name came into my head. He's LDS, and had previously told me he'd be willing to host a site for any topic that was in keeping with Christian ideals. What could be more in keeping??? He's already started the process. laurie eirual_s@hotmail.com