Not sure how it would be monitored in a database, but maybe somehow tracking the bone age in comparison to the actual age. Also, maybe some of the "common traits" that people wonder about their being CAH related (even though the Dr.s say no). Some of the things I've seen mentioned on the board include dark skin, headaches, aggressiveness, depression, girls who prefer what are thought to be 'boy' things, etc... There are a lot of things that people question and a lot of things that appear to be common traits among our CAH kids. It would be interesting to see the results of any data collected on those things.