Sorry I read your later post first and now I see your field list. Oops! My question is one of "focus". Would this data base be used primarily by parents or people with CAH trying to sift through questions/ideas? (e.g. my child is having headaches. . . ) Or is it designed more from the medical perspective to come up eventually with a best practices for treatment? If it is the latter I would think that organizations like NAH and NORD and MAGIC would want to know about it/be involved. Also, I wonder if it then contains too much info (do they really need to know affected siblings to treat).