Re: To all the great moms out there (nt)
4/1/00 11:27 AM
Sorry, I had tears in my eyes and pressed the enter key by mistake. Even though we may never meet in person, I appreciate all you (the collective you) have done on this board to help me through a bad day, to get some good info out to all of us and to just lend a ear when I need to vent. As all the moms have said, we have all been there...feeling like failures. I still feel so stressed out and incompetent when my kids are sick and I have been at this for 9 years. My son is 14 and my daughter is 8 (CAH non/salt wasting). There were times when my daughter was an infant that I felt she must have felt I was abusive. For the first six months of her life I had to give her injections every 3 days because it was the only thing that was working to bring her levels down. Imagine Christmas morning--open your gifts--get a shot--what fun for her! I spent many a night crying my eyes out in the bathroom so that my son, who was 6 at the time wouldn't think anything was wrong. I would tell him I got soap in my eyes when I came out. He must of thought I had a real problem washing my face as I would get soap in my eyes so much! Both my kids still have an awful time taking any liquid medication without gagging. Luckily, now they are both old enough for pills. That time will come for your child. You know, Laura (and I know you do), it does get easier but I can walk by our wall of pictures sometimes and for no apparent reason start to cry. Of course I know it is because I don't want my kids to have CAH and I want them to have wonderful lives with no problems...ever. Wouldn't that be great?!! I keep hoping for the day when someone will find a way to eradicate this disorder or improve treatment but for now I remain grateful that there is a treatment that makes their lives better than they would have been had they been born before treatment was available. The chocolate, the wine, shop 'til you drop, whatever it takes--do something nice for you. You deserve it. Like they said at the end of "It's A Wonderful Life"--"No man (woman) is a failure if he has friends". I'd like to think we are all friends who won't fail because we have each other. This board rules!!!!!!!!
Liz
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