Hon, I havent been able to find anything on the reconstructive surgery. When I was old enough to ask questions my mom didnt have the answers. She was a young mother and like the rest of them, at that time , didnt know much about CAH. It was practically unheard of. I personally resent the fact that at the time the only thing the MALE doctors knew to do was remove my clitoris....why? It was enlarged so therefore remove it? I want to find out about the progression of the reconstructive surgery but like you, I havent been successful. I still struggle w/this at 33 years old. If there are any moms reading this, the best piece of advise I can give you is to explain to your children what had to be done and know all there is to know. Because he/she will be asking questions when they are old enought to understand that they are in the hospital alot or why they had to get the injections. I didnt understand all of it and Mom felt so defeated because the doctors didnt provide her w/the information that we have today. If anyone knows of any reconstructive procedure that is done on adult women please, let me know. I have learned more about my body as I get older but I will have to admit, I was sexually dysfunctional because I had no one to talk to or anyone to explain to me. I have been able to accept that I will have to take meds for the rest of myl life and that a simple 24 hr virus can put me in a crisis but my biggest obstical is my physical differences "down there". It is very difficult to be intimate w/someone when I have to explain what is missing. That has been the one thing I cant seem to overcome. I didnt intend to go on like this. This is first time in my life I have been able to corrospond w/women who can relate to what has happend. Thank goodness I found this board. If anyone wants to corrospond feel free to email me. Good luck to everyone.