I am not so sure that I am in the same boat. We have been EXTREMELY lucky thus far. My son is 3. He has not ever been on the liquid cortef...always had tabs. His bone age is advanced but not outrageously advanced. Last check he was at bone age of about 4 - 4 1/2. We knew shortly after birth that he had the CAH, not from a crisis but from the newborn screening. He has never had a crisis. Why he has never had a crisis is beyond me!! We were not encouraged to give him cortef until he was maybe 6 months old. He was born 10 weeks premature and still had less complications than other premature boys might have had. He has fallen down the stairs and puked and I cant remember what else in his life WITHOUT me knowing that I needed to stress dose him. No crisis. WOW. He didnt get his medic alert bracelet til he was almost 3. The accident that totaled the car was without him in it. PHEW. We didnt know about the injectable cortef til recently. We have it now!! We have been lucky enough to overcome all the lack of information and truth of CAH. We have been fortunate to have the NIH research program that we too are now a part of. Hopefully we can help other kids with CAH by allowing our son to be treated there. I hope that no parent has to ever go through the SHOCK that we did to learn the truth and consequences of CAH. Yet everyday I read something on this board that confirms it is still going on. OH the stress! Brayden has had 2 surgeries (with the extra IV steroids) BUT.... I didnt know of the real risks and he had complications of some medications and I am WOW just thinking of what the ER did to him without stress dosing him and he is here still today. I have to ask myself if having another child is a wise choice given the possibility of CAH. We have been lucky with Brayden. Would we be lucky again? ( Brayden is the best and coolest kid- I would take the risk) I could go on and on with the trials and tribulations MY family has gone through with this CAH. I hope that I am helping SOMEBODY by telling our story. Every story is different. And I have only touched on our concerns. Keep reading and posting to this board. It has been a great resource for me and others. Susan