Thankyou, yes you are helping someone by telling your story. We also suffer from lack of info and truth. Our Endo convinced us not to treat Stephen. They didn't even check his bone age. I am in the process of getting insurance on Stephen and starting over with a CAH expert. Stephen is now 4 years old. We have been through a lot. His first endo said he might go through puberty at 4. He has had a few erections but no other signs, except I think he is more interested in sexy women than is normal. But who knows what the kids discuss in preschool these days. I am much more enlightened now, thanks to this board and all those that participate. Thanks. C ya