If your state does not have newborn screening (or other states near you), I think that you can focus on this and then people INCLUDING doctors will be more aware of CAH. Contact the hospitals in your area and see you can offer suport to parents of newborns with CAH and see if the hospital will let you start a support group for CAH. I think that would be a really big help. I wish that I had that kind of support 6 years ago when my son was born with CAH. preston@kreative.net