Wow,that is a different experience from ours. How difficult for you. The last thing you need when your child is ill is some medical personnel giving you a hard time. We went in to Children's Hospital in St. Paul, MN. Because the Twin Cities is such a big metro area most of the dr.s have at least heard of CAH (at least at Children's). I know we are very, very fortunate. It is wonderful that you are such a strong mom for KC!