abnormal eeg
4/14/00 8:51 AM
Hi there everyone, I just got some disturbing news about my daughter. She had a seizure about a month ago and her endo decided that although it was probably nothing, he would like for her to have an EEG done. He called me back with the results and was not happy with what he saw and now we'll be seeing the neurologist soon to discuss what all of this actually means. I must have cried for 2 whole days. She's only 3 1/2, has salt-wasting CAH, has had 2 surgeries, is starting to ask why nobody else has to take medicine, and now hates to go to the hospital for her blood tests. She was excellent through the EEG - obviously a little scared but a trooper like she has been through it all. At such a young age it's hard as a mom to watch her go through all of this, not to mention I'm back at that place that I know you all know so well - the "not knowing stage". Apparently, epilepsy will not affect CAH at all so I am happy about that news. Thanks for listening, I know that all of us on this board know all too well what it's like to watch our children be so strong at such a young age. I think (hope) that it will make stronger people out of them because they are truly special little people.
mom
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks