My, haven't checked the board in a day and found so many new messages! How complex this disorder is, and how frightening. My son, who we were thinking was having seizures, due to the fact that, on the way to the hospital, he would have these staring episodes that we considered possible petit mal seizures. So, we were referred to a neurologist. He recommended an MRI and an opthamologist visit. The opthamolagist found pesudostrasbismus with intermittent estropia (a crossing of the eyes). We just received another diagnosis from the MRI. My son also has Agenesis of the Corpus Callosum, which is a piece of the brain (imagine a hamburger, with the buns being the two hemispheres of your brain, and the meat or burger part being the corput callosum)that is missing, as it never formed, somewhere between the 10 or 12th to 15th week of gestation. I got on the internet, researching this new rare condition, and found that, if it is diagnosed, that metabolic disorders are also tested for (such as CAH). The neurologist advised that, "Whatever caused the CAH, caused this." I think he meant that it may have happened in conjunction with the CAH, or around the same time that the recessive genes combined to form the CAH condition. These children can be relatively slow, have wide set eyes and frontal bossing (a forehead prominence), like both my CAH son and non-CAH daughter have. So, he may or may not be able to live independently when he is an adult. He is now 16 months. I urge anyone who thinks their child may have had a seizure to report it immediately to their pediatrician, and request an MRI. The MRI is stressful to the CAH child, but stress doses are given prior to, and Thomas came through just fine. So, it also explains the head banging. It is consistent with a developmentally delayed child, according to the neurologist. I have spoken to the ACC network, and found that this can be an incidental finding (the woman's child was not diagnosed until age 9), but, if there is any suspicion of this disorder, please contact your physicians. I don't want to scare anyone, but, it is better to know sooner than later. Since it can be in conjunction with other syndromes or metabolic disorders (I found one web page on a boy with septic optic dysplasia, a growth problem and ACC). Just wanted to let you all know. You have been so kind to reply to my postings. We are pretty numb; I still can't believe it. But, we have been through the rare diagnosis thing before, with his CAH, so it does make it a bit easier. I understand that CAH is an autorecessive disorder, but this is something new. Thank you for readding this very long posting. Please keep my child in your prayers. We love him dearly. Thanks