Thanks for the info, Peg
4/22/00 10:36 PM
My sons doctor is the Head of Pediatric Endocrine (BIMC, NY)- she is very thorough. She actually suspected CAH the moment she looked at him. He was only 4 weeks old scheduled for his first pediatric vist. He had been vomiting and irritable all week long. His salt levels were so low that its a miracle he was still alive. After 3 days the blood test (wich were confirmed also in California) showed he definitely had the 21 hydroxylase salt wasting form of CAH. She has been testing my son's blood monthly up until a few months ago, now its checked every other month. She is the one who referred me to the Psycho-endocrine specialist in Columbia Presbiterian. My son is in the 10th percentile. Although he is short for his age, his weight is fine for his height. His meds have been reduced substantially - he was taking much higher doses the first year of his life. Again, because there is no FACT linking CAH and homosexuality (just a possiblity), I was hoping I could get more information from someone who may be living this same situation. ......or maybe there is someone out there who can relate to my problem or has the same fears and is willing to share his or her experiences/opinions with me. Well, thank you for taking the time to look up that information. It means a lot to me :)
lucy
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks