I think you may be the 1st generation of survivors. I remeber 20 years ago our endo told us that CAH was discovered in the late 50's. And he asked if we had any unexplainable deaths of babies in our families. Both my husband and I had siblings of our parents die as infants. Was it CAH????? It could have been. They wouldn't have talked about any birth defects back then. Everything was so hush hush. I'm interested also in this study. Keep us posted. Vicky