*sigh*...the wheels grind slowly. But, HEY, they seem to be grinding....that's a good thing. The Advisory Council for Hereditary Disorders met tonight (May 4) in the state office buildings. I was present at the meeting, and my daughter's ped endo even showed up (God bless him!). OK...the meeeting didn't go like I wanted it to in some ways...but everybody there (the Council and guests) agrees that newborn screening for CAH is a good idea. That's a big step.....I don't have to try to convince anybody....which is a good thing because I probably couldn't sell a life jacket to a drowning man. The Council would like to set up a subcommittee which would, among other things, be sort of a fact-finding thing....the main one being coming up with some sort of protocol to deal with those cases which test positive for CAH during the screening process. Thanks for all your support, guys......whew....I just got home from the meeting and it's comforting to back to a place where you know EXACTLY what I'm talking about, feeling, etc. The members of the Council are super people.......but they don't know firsthand what CAH is like. There was another couple from Maryland (2 CAH kids) at the meeting, too.....and they had some great input. I'll keep you all up to date. However, this Council really gears down for the summer months....so we're talking Fall....