My daughter has bone scans once a year. Her bone age now 12-18 mo below her actual age. She has been on cortef tablets since 18 mo old, before that she was injected every 3 days with cortizone acitate. She also takes florinef. She has never been in a crisis, always healthy. She sees her endo every 3 mo for blood work, dr visit checkups. At our last visit (3 weeks ago) I asked about her exceptional health with CAH. Because I recently found this board and have discovered that my daughter seems to be the exception to all these problems I read about. Dr. chose his words very carefully and told me my daughter was a "CAH success story". He looked at my daughter and told her that he had a boy patient just like her - this told me she was indeed an exceptional CAH case.