Re: New to CAH
5/22/00 11:02 AM
Welcome! And Congratulations! Have you checked out the links (top of 'New Format' - left side of 'Old Format')? My SW-CAH son is now 15yrs old, and up until I got on the internet almost 2yrs ago, I had no other info or support other than his Endo. This board has been a God send to me too, even though my son is one of the success stories, it's nice to have others who understand. What state are you in? We're in Pennsylvania, which does not do mandatory NB testing for CAH, but a few of our hospitals do it on their own...the one my son was born in, in 1985 didn't then but does now. The last I heard, PA is 'considering' adding CAH testing. I think the decision has to do with the cost to the state to run the tests.
Deb L
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