I am sure you are exhausted. It is both physically AND emotionally draining to do something like this. I know because my son is involved in the study being run by Dr. New out of Cornell Hospital in New York. I would love to hear what you think about how it is working for your son. You can email me at ltorony@CT2.nai.net and maybe we can compare notes. I, for one, am very anxious and concerned but it may be the only chance he has to recover some of the stature that was lost. I hope you and your family can get back to life as you know it in short order. Maybe even enjoy a little backyard barbque! Our prayers are with you. Lynn