I read the story last week and it made me cry. My daughter is 17 and has never had an adrenal crises or really any problems with her levels and the story really opened my eyes.My daughter has always been very good about taking her pills and I wanted her to feel as normal as anyone else so I never really stressed to her that she could die. I think I will show her the web site. Better safe than sorry. She is my only child and I can't have anymore. I don't think I could go on if anything happened to her. I didn't really realize just how many people have lost their children to this even after being diagnosed. My heart goes out to all of you. I also decided to start using a "nickname" because real names are so common!