I am soooo sorry to hear of such a great loss. You experienced everyone of our nightmares as moms. Raising children with not only normal every day challenges, but with an added challenge of CAH is so hard. It sounds almost selfish to thank you for letting us share your grief, but perhaps you have saved many lives out there. You have "highlighted" what to look for, for us. I can't thank you enough. God be with you.Laura