Pamela, my son suffered a "permenant loss of stature" according to three different doctors. We were told that our only hope of any possible recovery was a growth hormone study group being run by Dr. New out of Cornell Hospital in NY. She is also doing a side study on the relationship of how non carrier siblings grow and thrive in comparisson to their CAH sibling. I felt compelled to offer our full cooperation. Part of this study is to do a DNA on the family to know just who has what. I don't think it is imparative for everyone to know their DNA for this. So, don't go adding this needlessly to your list of stressors. Good luck to you and I will keep you all posted (you know you can't shut me up!)