Re: How much do you tell?
6/12/00 11:03 AM
My daughter is 9 and is in 3rd grade. I don't think any of her friends at school ever questioned her medication or her medic alert bracelet. It's just something she's always done since the first day in grade K. Outside of school we've been asked about it a few times and it was really no big deal. We just said the medicine is because her body can't make certain things that it needs, so she takes pills instead. When she's been asked about the bracelet, she just says it's because she takes medicine and would need it if she ever got real sick or in an accident. The questions don't seem to bother her at all. And the answers we gave seem to be enough to satisfy the curious questioners. At school, the nurse was given information about CAH and she has an emergency letter from our endo. She has medication (pills and injections) available at school. The nurse attends every field trip my daughter goes on... just in case something happens while they're away. She has also informed the teachers that they are to send my daughter to her immediately if she is not feeling well. The office staff also knows that they should give me a call if there's ever any cause for concern. We also live in a very small town. At birth, we were told we had a son and we shared that information with everybody. Four days later we had to take it all back and announce we had a girl instead. We still live in the same town. We still see the same people. There is NO problem whatsoever. My daughter is very much a tom-boy, which I suppose could've added fuel to the fire. But it's really been a non-issue. My child is very much accepted and she is very popular among all the kids... even the girls who are often jealous because she usually doesn't play with them (barbie dolls!!?? dresses!!? Yuck!!!) She is a very healthy, happy and well-adjusted child. I think if you have a calm and positive attitude about CAH then that will be passed on to how she feels and to how others treat her. As long as you treat it like it's just a part of life you have to deal with, others will follow your lead. There were - understandably - some questions when we had to make the "she's not a boy afterall" announcement. We simply explained that because of her medical condition her body didn't develop correctly on the outside... but that everything was perfectly normal on the inside. I used to wonder how that would have an impact on her as she grew up. I feared that people would be "watching" her, or pointing her out and saying "there's the one that was a boy when she was born." It hasn't been that way AT ALL. To be honest, I don't think most people (other than those who are the closest to us) really even remember the circumstances surrounding her birth. I can understand your fretting over certain issues, especially living in a small town. But we're also in a small town and we have really had no problems at all, so I hope I've been able to give you at least a little bit of comfort. Enjoy your daughter, take each day one at a time, and everything will fall into place. Good luck!
Laurie
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