Re: TOO MANY MESSAGES BEING POSTED ON THIS BOARD!!! (??)
6/13/00 8:29 PM
No, I'm not talking about issues like our children starting school - that is another important issue (there are so many of them). BUT, I have truly noticed a ton of people who used to post on here (way long months ago) who had technical CAH information do not post on here anymore. I'm not talking about "messages & replies with CAH content" - I'm talking more about a message that might say something like "I'm looking for an endo in the Philadelphia area, does anyone know of one?" OR "Does anyone know why renin levels can be off?" - I SEE NO REASON TO REPLY IF ALL YOU HAVE TO SAY IS "I don't know, I hope you find out"). THAT IS WHAT I CONSIDER CHIT-CHAT - when someone replies to the message just to say "I don't know, I hope you find out." WHY CAN'T YOU JUST EMAIL THE PERSON DIRECTLY TO REPLY IN THAT TYPE MANNER? IT IS WONDERFUL TO HAVE CONTACT WITH CAH PEOPLE - but many of the replies COULD BE just directly sent to the person who posted if it is just a comment like "Hi, I feel for you, I hope you find your answer." WE ALL FEEL FOR EACH OTHER - BUT LET'S HAVE THIS BOARD BE SOMETHING THAT ***EVERYONE IN THE WORLD*** CAN READ. YOU AREN'T THINKING ABOUT THE NON-ENGLISH SPEAKING PEOPLE WHO IT MIGHT TAKE 15 MINUTES TO READ EACH MESSAGE BECAUSE THEY HAVE TO GET THEIR ENGLISH-SPANISH/FRENCH, etc. DICTIONARY OUT TO READ THE MESSAGES --- AND THE DOCTORS, NURSES, EMT'S, MED STUDENTS ---- WHO DON'T HAVE TIME TO CHECK THIS BOARD EVERYDAY.
Anon (mom)
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