I personally would not mind if you edited requests from people who want to further their own research or whatever. There is a possibility that a young person who reads the board would e-mail the person and divulge things that they really shouldn't. We have had many teenagers come to find other teens. Also.....I see these attempts as the easiest way possible to get subjects for such research. I have never had a request from my endo to help someone else with their research other than the NIH study. If is really furthers the cause of CAH, wouldn't they seek medical professionals who treat patients with these disorders? So what does that tell you? Anyway, as the webmaster, you have every right to have this board have a certain tone and the responsibility to protect your time investment. ***Venting to follow....do not read unless you like to read that stuff*** I have never seen or read anything produced by someone who does not deal with CAH regularly produce something that did not take a small thread of CAH and turn it into the main focus of the disorder. I have a son who nearly died because boys (historically) have such little focus in CAH...and all people outside of parents can focus on is the issue of when girls are born virilized and even all of THEM do not have to deal with this. Please don't take this statement as if I don't sympathize with these girls and the desicions their parents must make for them. I truly do care.......but I get really tired of this focus. As if our sons lives are less important than the daughters. I am sorry to vent here...guess I have built that up. Watching my son nearly die as his symptoms were ignored was just traumatic. Trying to feed him when all he would do is throw up, go to have him weighed and have my infant drop 2 pounds in one day. I watched him be do dehydrated that it was difficult to get blood to even test. I saw my son in PICU, hooked up to tubes all over....it was hard to even hold him to try to feed him and love him. I watched my son's chest practically convulse from the high potassium level he had. He is truly a miracle to be on this earth. Nurses told me that it was amazing that he could survive the potassium and sodium levels he had and have the fight he had. The last thing I worry about is his genitals and I hate his disorder being reduced to that. Danny...do what you think is right. You have my support to make it clear to people outside the group that they must get clearance before they solicite the group.