Unfortunately, we are not alone in what he have experienced as the parents of sons for whom screening did not benefit. Each time I read the catalog of symptoms in the beginning in others stories, it amazes me how we could all experience close to the same thing. I guess I was lucky, if you can be lucky in this scenario, that the neonatologist treating him suspected CAH among a list of other things from the very beginning of his readmission to the hospital. Of course, I knew that he did not have that "rare disorder" that they would have to call about in the morning. His diagnosis was that quick once he was being treated my real doctors (I won't even GO THERE about our pediatrician). A ped edno had just moved to our town just a few months prior to his birth in 1995. I guess she did not know that she was brought there for our son! At least, that is what I like to believe. And speaking of the "high fives", we joked a bit about that, too. Never having had a son before or even diapered a newborn boy, I never realized how much out of the norm he was! I see his birth pictures before he was even bathed, and I think......Geez, how could they not have thought SOMETHING was different! I mean, he was a big boy, but not THAT big! It really makes you wonder, too, why they did not have a crisis due to circumcision!