Re: Re: Good news!...Daughter's levels are all perfect! FINALLY!(chat alert!) (nt)
6/17/00 10:47 PM
Well Lynn, I am scared to tell you that I still have her on Cortef Suspension. You and Wendy are ALWAYS in my head telling me not to. I can certainly see why from what you both were through. I took her a month earlier for her draws because of my huge concern about the Cortef. I was SHOCKED to hear all her levels had come back amazingly great. Never have been more stable. But now I am thinking. What if the "fixed" Cortef suspension brings on another fight with her levels again? Or was it the Cortef or was this going to happen anyway? I changed her med times, which in turn changed her draw times. Did this have anything to do with it? I have an appointment with her endo. in August. I will certainly discuss the idea of taking her off this suspension once again. Please don't think I am crazy. I know you have read my BAD experience with her first endocrologist. I trust NO ONE now. But it is something I am working on with her new endo. and he understands. But if I think something should be done a certain way, I get that last word in it. I find no problem debating him. He wanted to change her to predisome. I did not want that. I wanted Cortef pill. The predosome was what he wanted if her levels continued to stay high. It has been a steady fall back to were she should be. I am just scared to see that bone age in August. I too beat myself up thinking, "Am I doing the wrong thing." Even if her levels stay good I am going to persue this Cortef pill. I don't want to continue to worry. I contribute my daughter's good levels to God. Because that is my prayer EVERY night, that her levels are safe. Prayer is the other "medicine" I give her. After all, they are God's children, we are just privelaged enough to care for them on earth.
Laura
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