Greetings from Turkey from a mother with a CAH child
7/5/00 4:45 AM
Hello.I have been reading your board for a few days but I'm really impressed as you are really good mothers and fathers always thinking about your childeren.Although we live in definitely diffent countries,we feel the same for our childeren as parents of them.When I read the board I think that I'm reading my own feelings.I have a 2 years old son and 5 years old daughter.After 10 days of my son's birth (I don't want to remember those days)there was a telephone call from the hospital telling me that my son has something wrong with his hormones.The call was on Friday and they told us to come to the hospital on Monday.Would it be possible that we wait for two days to learn what is happening?I was crying,looking at my healthy looking child's face and crying more.This should have been a nightmare.On saturday we visited a doctor and got some information about CAH and made test.The results were showing that he had non-classical CAH. We visited many doctors.Some of them said wait for 6 months,other said we must begin Hydrocortisone as soon as possible.When he was 2 months old we began giving 7.5mg/day cortisone and the test results became normal.Up to his age we didn't have any trouble with his health.He is very lively and likes the taste of his madicine very much.(I can't taste a little bit of it but sometimes I think that God helps him to taste it like a sugar)I sometimes have some doubt about his teenager years if he gets his medicine when he is alone.He is still taking 7.5 mg /day but our new doctor said that we need to decrease it as his height is in 10 percent.We will decrease it to 5 mg/day.We have always the hope that our child doesn't have CAH.We have the possiblity to visit a British Doctor in London.In our country we can't find a very sucessful doctor abouth CAH.Should we have DNA test to be sure of CAH or lab.test are enough?We are not relatives with my husband and the possibilty to have a CAH child is very small.Do you have the same feelings?Or do we just not trying to accept the situation?In anyway we must thank God for giving our small childeren with CAH or not as we love them very much.
Aysim Filiz
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